Let’s face it. It’s scary. When you are diagnosed with small fiber neuropathy and when you have absorbed everything you can about it, it is normal to ask, “What will happen to me?” or “Why me”. The most frustrating thing about it is when the pain doctor tells you that it is idiopathic meaning the cause is unknown.
How can you treat a disease in which the cause is unknown? Living with this disease has to be one of the most difficult thing that people can go through. Imagine having constant pain in your body even if you swallowed all the known pain killers in this world. Imagine not being able to sleep at night because of the continuous pain. And imagine having to experience this everyday for months even for years.
A lot of people who are diagnosed with small fiber neuropathy go into bouts of depression and that is understandable. All thoughts are running through their minds. What if they can’t walk? What if this continues for years? What if they Career will have to be put off or sidetracked. They may have to start on a new lifestyle and new activities because of their disease.
Prescriptions can help temporarily with the pain but since they don’t know why they have it, it gives them the feeling that their life is being controlled by this unknown thing that’s sapping their energy and the life of their existence.
If you are diagnosed with small fiber neuropathy, how do you cope with it? Most people can’t do more than leave it to their faith. The only thing they can do is to endure the constant pain and the inconveniences and pray.
In most instances, small fiber neuropathy, the idiopathic kind, just goes away on its own. But there are instances when it continues to rob a person’s vitality for years and years. When this happens, the depression and the insecurity can only be managed by strong support from family and deep spirituality.